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Post by nyuboi on Sept 10, 2013 15:51:30 GMT -5
So I am meeting with Dr. Pomp tomorrow/Wednesday (Cornell), Dr. Herron on Thursday (Mt. Sinai) and also Dr. Inabnet on Friday (Mt. Sinai). I will discuss the possibility of doing stuff in stages and fixing the hernia first and waiting for DS versus pursuing RNY now. It's not just my GERD, its esophageal issues too. The vomiting at night has stopped, but I have still vomited after leaving restaurants 3 times in the past month - literally right after walking out the door. The GERD has been pretty under control using Nexium and Prilosec together.
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sgee
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Post by sgee on Sept 10, 2013 16:14:44 GMT -5
... Your going to have to be your own advocate for the rest of your life with these surgeries and your going to have to be confident in your decisions or it will get you killed. Spot on. You rock, Kyal!
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Post by nyuboi on Sept 11, 2013 19:49:16 GMT -5
In my opinion, it really really matters what hospital you have surgery in. In NYC....in order of my preference.....Cornell, Columbia-Pres, Sinai, NYU, Lenox Hill. Special Surgery if it's an orthopedic surgery. I know Roslin is at Lenox Hill. But if something went really wrong....I'd rather be at Cornell, or Columbia-Pres or Sinai. Newyorkbitch, Today I saw the head bariatric surgeon at Cornell, Alfons Pomp. He said someone with esophageal issues, GERD, and irritable bowel syndrome should not be getting the DS. He is not crazy about the idea of only fixing the hernia and then doing WLS later. He said I have enough surgeries/scar tissue in the esophagus area and that would mean doing another 2 surgeries. Plus he said the hiatal hernia alone is not going to cure my GERD. I would need something like a Nissen, but that cant be done if I am going to get a DS or RNY. Something about a gastric plication... Plus the stats on overweight people getting a Nissen with a 40 plus BMI are not great, that 35% of them would still need Nexium, something the GERD surgeon had told me when I had the testing done last June. I think he said all reflux operations involve a plication that would preclude being able to do a good sleeve -- I think that's how he said it, my notes are hard to read. I have already had the hiatal hernia repaired once and it came back. So, all in all, he thinks I should do the RNY and not do multiple operations. In response to what NYU said about BPD before BPD-DS for me, he said that the scopinaro procedure comes with its own host of problems, which is why it was improved to a DS. However he said some other countries still do a ton of them. Btw, he said people with DS will go to the bathroom about 5 times a day more than they used to. Does that seem accurate to you folks? So if I go 3 times a day, I would now go 8? (And 3 times in the morning). Seems extreme, but he could be saying that cause of my IBS. I am meeting with Herron tomorrow at Mt. Sinai in the morning. I am debating if I should cancel my Inabnet appt. at Mt. Sinai on Friday because I'm already meeting with his partner, Herron, on Thursday. It would be the same office. Will see what Herron thinks about doing it in stages tomorrow. I'm off to watch America's got talent....
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sgee
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Post by sgee on Sept 11, 2013 20:05:05 GMT -5
Btw, he said people with DS will go to the bathroom about 5 times a day more than they used to. Does that seem accurate to you folks? So if I go 3 times a day, I would now go 8? (And 3 times in the morning). Seems extreme, but he could be saying that cause of my IBS. No, not for me, at least. Usually 1-2 times in the morning and that is it. If I am eating badly, it may be more frequent and/or occur throughout the day. The key words there would be 'me. eating. badly.' It always surprises me when surgeons tell people this. I think it is their way of providing worse case scenarios. I think they should add the caveat that it depends on one's degree of compliance.
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Deleted
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Post by Deleted on Sept 11, 2013 20:30:03 GMT -5
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Post by newyorkbitch on Sept 11, 2013 20:45:49 GMT -5
So what is Pomp actually recommending?
I poop about 5 times a day, 2-3 of those in the morning.
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Post by newanatomy on Sept 12, 2013 1:29:54 GMT -5
Nyuboi,
Are you going to ask different doctors the same questions until you get the answers you want to hear? In other words, are you searching for a doctor, who takes your insurance and is willing to perform the DS on you, even if it isn't in your best interest?
I know you had your heart set on the DS. Is it still in your best interest to pursue it?
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Deleted
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Post by Deleted on Sept 12, 2013 7:23:26 GMT -5
Same here. about 5 times a day, depending on my intake. 2-3 times in the morning, then once in the evening usually.
Much more like a baby. eat, then poop. my motility is excellent.
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Post by nyuboi on Sept 12, 2013 15:54:02 GMT -5
Same here. about 5 times a day, depending on my intake. 2-3 times in the morning, then once in the evening usually. Much more like a baby. eat, then poop. my motility is excellent. Marc, you lost all that weight in a year? Good for you!!! Congrats on reaching goal.
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Post by nyuboi on Sept 12, 2013 15:57:55 GMT -5
If you have to have a wrap, you have to have it. But is sure is a shame you're not in CA, where Dr. K said he might be able to do something different. Has your insurance been paying for all of these 10th and 14th opinions? Mt. Sinai and Cornell were out of network, I self-paid negotiated rates. I was told I can't have a wrap and then get an RNY or DS, the hiatal hernia has to be done differently If I am getting WLS.
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Post by nyuboi on Sept 12, 2013 15:58:25 GMT -5
So what is Pomp actually recommending? I poop about 5 times a day, 2-3 of those in the morning. RNY and Hernia repair all at once.
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Post by nyuboi on Sept 12, 2013 16:04:37 GMT -5
Nyuboi, Are you going to ask different doctors the same questions until you get the answers you want to hear? In other words, are you searching for a doctor, who takes your insurance and is willing to perform the DS on you, even if it isn't in your best interest? I know you had your heart set on the DS. Is it still in your best interest to pursue it? I already have a doctor willing to do the DS on me in-network, so was not searching for that. I was told on here to go see Dr. Herron about the plan of possibly doing it in stages with the hernia repair first and DS later. This week I went to the top hospitals recommended on here in place of NYU. In regards to whether or not it's in my best interest, it is NOT. RNY is and chances are that's the route i'M going. It's between regular BPD (scopinaro) and RNY. The only reason BPD was on the table was because it would give me the same common channel length and malabsorption without having to have a sleeve, the part that is not good for me because of the esophageal issues and GERD. Heart set on it? Yes. In best interest? No. Starting to accept that? Yes.
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Post by nyuboi on Sept 12, 2013 16:08:05 GMT -5
EN, do you not recall us being told not to comment on each others posts? Do you recall both of us being placed at a 25% warning level? You can't help but slip these comments in. I was not going "round and round," I was doing what was suggested on here the last two pages: 1) Talking to Herron about doing it in stages and getting his opinion on everything, and 2) Going to the top hospitals suggested instead of NYU. I can't win with you, even when I do what is suggested on here you jump in at me. Your post wasn't for constructive criticism or feedback, it was just to slip another one-liner in despite where that got you and I last year.
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Post by nyuboi on Sept 12, 2013 16:42:27 GMT -5
Go see Dan Herron about this plan. DR. HERRON (MT. SINAI). I went today per his name being dropped on here. I LOVED HIM. He spent more time with me than any other surgeon has. (With Roslin/Fielding they would be walking out the door as I'm trying to ask the questions I wrote down). He did not rush me at all. He asked if I had more questions. He examined my stomach. He read all the reports: pH acid testing, motility manometry, my endoscopies, my upper GIs and esophagrams, etc. He even viewed the last two radiology test fi;ms and xrays on me, and showed me on screen everything. He showed me that its not just reflux, but also that my esophagus is having tertiary contractions -- motility type stuff -- from the lap-band. He said there are 1 or 2 surgeons that do a Nissen with a DS, but he would not agree with it. He said there would be too big of a stomach for a DS, and that with RNY can eliminate too much reflux. He said a Nissen would be bad with my esophageal motility anyway, and that most hernia repairs involve a fundoplication that can be a problem. He does think my esophagus might get better with time, and that GERD will get better with hernia repair, but he doesn't think I will return to normal from just the hernia repair. He said the esophageal issues are a form of a motility disorder -- not as severe as achalasia, but still... A hernia repair is done differently (more aggressively) if you're not getting WLS in the future. If you are, the options aren't the same. He would be willing to do the DS on me despite only having a 40 BMI if I didn't have the esophageal issues with the severe reflux. He wasn't so concerned about the IBS like Pomp was. He said my esophagus having tertiary contractions when I swallow and all -- and any motility disorder at all really -- rules out the DS. He did not comment on the Scopinaro that NYU wanted to do, although I believe he agreed it wouldn't hurt my reflux like a sleeve. His overall was to want to do an RNY. I am supposed to see his partner (Inabnet) tomorrow as my final consult with these hospitals, but I may cancel since I already did Mt. Sinai with Dr. Herron. It seems DS just isn't going to me right for me, and I don't know that waiting and doing mild hernia repair first will change that. The lapband truly limited my options. He said that's why they are doing much less of these bands -- cause of cases like mine.
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Deleted
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Post by Deleted on Sept 12, 2013 17:24:08 GMT -5
EN, do you not recall us being told not to comment on each others posts? Do you recall both of us being placed at a 25% warning level? You can't help but slip these comments in. I was not going "round and round," I was doing what was suggested on here the last two pages: 1) Talking to Herron about doing it in stages and getting his opinion on everything, and 2) Going to the top hospitals suggested instead of NYU. I can't win with you, even when I do what is suggested on here you jump in at me. Your post wasn't for constructive criticism or feedback, it was just to slip another one-liner in despite where that got you and I last year. Wrong. It was to point out what IMNSHO should be obvious: That if you wait long enough and seek enough opinions of strangers on the Internet and wander from surgeon to surgeon, you will not need WLS, you will need cancer surgery. And it appears that surgery for esophageal cancer can be an utterly brutal form of WLS in its own right. I would much rather that you NOT go THAT route.
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Post by newyorkbitch on Sept 12, 2013 17:33:49 GMT -5
You don't need to see Inabnet.
Looks you are going to fix the hernia and do an RNY at the same time. You'd be in good hands with Pomp or Herron.
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Post by nyuboi on Sept 12, 2013 17:33:54 GMT -5
EN, do you not recall us being told not to comment on each others posts? Do you recall both of us being placed at a 25% warning level? You can't help but slip these comments in. I was not going "round and round," I was doing what was suggested on here the last two pages: 1) Talking to Herron about doing it in stages and getting his opinion on everything, and 2) Going to the top hospitals suggested instead of NYU. I can't win with you, even when I do what is suggested on here you jump in at me. Your post wasn't for constructive criticism or feedback, it was just to slip another one-liner in despite where that got you and I last year. Wrong. It was to point out what IMNSHO should be obvious: That if you wait long enough and seek enough opinions of strangers on the Internet and wander from surgeon to surgeon, you will not need WLS, you will need cancer surgery. And it appears that surgery for esophageal cancer can be an utterly brutal form of WLS in its own right. I would much rather that you NOT go THAT route. Funny my father said the same thing last week. Btw, this is the nicest thing you ever said to me, EN. :-) Joking aside, thank you for the feedback. Maybe you're not so bad.
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Deleted
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Post by Deleted on Sept 12, 2013 17:38:37 GMT -5
Funny my father said the same thing last week. Btw, this is the nicest thing you ever said to me, EN. :-) Joking aside, thank you for the feedback. There are some people upon whom I wish death. They are in the category of folks like Ted Bundy and Jack Hyles (you might have to Google him, preferably in connection with Tina Anderson). You are quite far from that category, even when I want to slap some sense into you.
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Post by PrettyGirlBounce on Sept 12, 2013 19:03:35 GMT -5
But is sure is a shame you're not in CA, where Dr. K said he might be able to do something different. Roslin bashed Dr. K big time. Won't go into details publically... (I know Dr. K is very respected on here, and he was great in getting back to me). You know, it really drives me crazy when you feel the need to post negative comments about what certain surgeons said about other top-notch surgeons when you met with them privately. If you have a personal opinion, speak it. *I* don't need or want to hear surgeon-on-surgeon bashing. It's entirely unprofessional that he bashed him so harshly in the first place (as you have inferred - it was pretty bad) and even more asinine that you feel the need to tell us about it. Could that *not* have gone unsaid? Why are you telling us this in the first place? How does it help your case? How will this information help the vets and others to opine on what route may be the most beneficial? WHAT GOOD DOES IT DO?
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Post by newyorkbitch on Sept 12, 2013 19:31:08 GMT -5
In fact, keep it up, and there won't be a good surgeon left in the area who is willing to work with you.
Go get the hernia fixed and the RNY at the same time. Go to Pomp or Herron. The End.
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Post by newyorkbitch on Sept 12, 2013 19:31:48 GMT -5
And I STRONGLY advise you to cancel the Inabnet appointment. You do not want Herron and Inabnet both deciding not to deal with you.
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Post by PrettyGirlBounce on Sept 12, 2013 20:03:24 GMT -5
In fact, keep it up, and there won't be a good surgeon left in the area who is willing to work with you. The End. Agree. With his loose-lipped, frivolous manner of divulging private conversations, I would NEVER take him on as a patient. Who needs it? Moreover, I have a hard time even understanding the reasoning behind it and it's value - which is nothing IMHO.
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Deleted
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Post by Deleted on Sept 12, 2013 20:20:33 GMT -5
Agree. With his loose-lipped, frivolous manner of divulging private conversations, I would NEVER take him on as a patient. But not really divulging, just implying. If Roslin said something he wants to share, fine. No doc is above scrutiny. That's fair. The implication dangling out there, however, isn't fair. Pages and pages of personal drama and minutiae. Same old same old... zzzzzzzzzz.
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Post by bradleyp on Sept 12, 2013 20:33:55 GMT -5
This thread is still going? Jeez. I hope we can close this down and put it to bed once and for all.
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Post by newanatomy on Sept 12, 2013 21:01:57 GMT -5
Nyuboi, Are you going to ask different doctors the same questions until you get the answers you want to hear? In other words, are you searching for a doctor, who takes your insurance and is willing to perform the DS on you, even if it isn't in your best interest? I know you had your heart set on the DS. Is it still in your best interest to pursue it? I already have a doctor willing to do the DS on me in-network, so was not searching for that. I was told on here to go see Dr. Herron about the plan of possibly doing it in stages with the hernia repair first and DS later. This week I went to the top hospitals recommended on here in place of NYU. In regards to whether or not it's in my best interest, it is NOT. RNY is and chances are that's the route i'M going. It's between regular BPD (scopinaro) and RNY. The only reason BPD was on the table was because it would give me the same common channel length and malabsorption without having to have a sleeve, the part that is not good for me because of the esophageal issues and GERD. Heart set on it? Yes. In best interest? No. Starting to accept that? Yes. Glad to know that.
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Deleted
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Post by Deleted on Sept 12, 2013 21:50:29 GMT -5
Agree. With his loose-lipped, frivolous manner of divulging private conversations, I would NEVER take him on as a patient. But not really divulging, just implying. If Roslin said something he wants to share, fine. No doc is above scrutiny. That's fair. The implication dangling out there, however, isn't fair. Pages and pages of personal drama and minutiae. Same old same old... zzzzzzzzzz. Y'know, when I see this kind of thing, I remember how Dr. Peters, may he RIP, went APESHIT over a basically goofy Google thing that connected his name and his practice/corporate name with ONE solitary image of a dead colon, which happened more or less by accident with some jerk's choice of tags for his advertising of that image. Doc called the police, the FBI and I forget who all else because he was so deeply distressed that the Internet could connect his kind heart and good name with that ONE IMAGE. That image NEVER made any discernible impact on him or his livelihood, and trust me, savvy people tried to make that connection. Compare that to how it must feel for MULTIPLE surgeons to have their names connected to the umpteen hits this username generates. I cannot imagine the bad will it must create. This would scare me. But it goes on, and on, and on. I don't get it. I'd be afraid I'd have to go to East Timor to get surgery if it were me. Nyuboi, I wish I could think of a way to get through to you how you are fucking yourself over by doing this. It's so VERY far past time to take this discussion private and to STOP maligning surgeons with your yapping. You have acquired several names of people with a clue and who are at least kinda-sorta willing to listen to your dithering. Please, oh please, have an iota of self protective sense.
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Post by PrettyGirlBounce on Sept 12, 2013 23:48:00 GMT -5
Agree. With his loose-lipped, frivolous manner of divulging private conversations, I would NEVER take him on as a patient. But not really divulging, just implying. If Roslin said something he wants to share, fine. No doc is above scrutiny. That's fair. The implication dangling out there, however, isn't fair. Pages and pages of personal drama and minutiae. Same old same old... zzzzzzzzzz. Yep, I totally agree that no surgeon is above scrutiny. If nyuboi wants to give his opinion about the surgeons, great. And while this particular last offensive (to me) post was only implying (well, factually stating it happened with ambiguous undertones) that Roslin bashed Dr. K...many other messages by him earlier in this thread are far more egregious in my opinion (such as the way he would copy/paste personal e-mails from the docs verbatim as opposed to paraphrasing, etc.). I could give 2 shits about who picks what surgeon. But my loyalty stands firm with mine and it sucks to know that his respected colleague is flagrantly bashing him to random patients behind his back (allegedly). I can't "un-see" that information but I wish I could. I talk to Dr K a couple times a week but I know it would do no good for anyone if he knew this information and I would never want that kind of drama. You said it best...it is simply not fair.
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Post by Joanne on Sept 13, 2013 7:22:23 GMT -5
Agree. With his loose-lipped, frivolous manner of divulging private conversations, I would NEVER take him on as a patient. But not really divulging, just implying. If Roslin said something he wants to share, fine. No doc is above scrutiny. That's fair. The implication dangling out there, however, isn't fair. Pages and pages of personal drama and minutiae. Same old same old... zzzzzzzzzz. More drama, IMHO. I've had so many conversations with Roslin about all things DS including other surgeons and just can't picture this. I know him very well and can't explain this. Perhaps something out of context fueled by frustration but I'm just guessing. Nyboi I really think your public airing of things is going to risk alienating more surgeons and limit your options again. They read and they talk. Make no mistake on that.
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Post by kyal on Sept 13, 2013 9:38:22 GMT -5
I think nyboi has a BPD of a different kind.
It's about time this thread was shut down and wiped from the face of the Internet for the good of the surgeons and nyboi him self.
And lastly how dare you associate Dr K's name with ANYTHING questionable. You have not met him, not been operated on by him, you have reported nothing more than alleged trash talk. Dr K gave me a second opinion gratis, looked at scans from the other side of the world and spoke to me by phone. I have the utmost respect for him only wish he was my my surgeon, it would have been an honour.
You should close your gossiping loose lips and STFU before you end up being sued for slander or ruining someones reputation.
If you really insist on continuing this merry-go-round of indecision you should pick a few people who will still put up with you and PM them instead of airing the dirty laundry of your life on a forum. We're all not that interested in the 72 doctors you have met with and screwed around. There is doing due diligence when picking a surgeon and then there is OCD, this is the later.
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Post by newyorkbitch on Sept 13, 2013 12:25:20 GMT -5
As long as nobody is violating the rules of this board, participation on this thread is not a problem. If you don't want to participate in this thread, you don't have to. If you don't want to read it, you don't have to. If you want to avoid someone, use the block feature.
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