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Post by Girlrocker on Sept 13, 2013 13:04:28 GMT -5
I think this thread needs to come to a conclusion, be locked. On here is a very serious discussion of health issues, surgeon/treatment recommendations which become devalued as this progresses. Start a new thread on the rants and raves board where the rest of this belongs.
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Post by Melinda on Sept 13, 2013 13:50:46 GMT -5
I agree with NYB. If this thread annoys or irritates, don't read it. You don't have to click on it to see the latest postings. If a particular poster bothers you, use your ignore button. I understand how sometimes postings and posters can become frustrating but it's better to not take it out on them and just move on.
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Post by goodkel on Sept 13, 2013 14:11:50 GMT -5
I will not be artificially stopping this conversation by locking it. If it tires you, stop reading it. Stop posting to it if you want it to die off.
Nyuboi has been contacted about the inappropriateness of some of his comments and they will be modified the next time he comes online or I will modify them myself.
I am not so worried about the reputation of the surgeons in question for a couple of reasons:
1. Nothing was explicitly said. Nyuboi could have misunderstood what he was told, heard insults when there was only a difference of opinion.
2. Consider the source.
Nyuboi is obviously obsessed with finding the perfect storm of hernia/DS surgery combined that repairs his esophageal issues with the best possible surgeon who accepts his insurance.
What he needs to do is break down each part of his problem to its core. Fix it. Heal. Then deal with the next problem.
If he wants the DS and can't or won't use the one surgeon who said he could do it all at once, Nyuboi has no other choice than to deal with his other issues first.
If he must do this all at once and right now, he'll have to accept the idea that the RnY is his only other option.
He doesn't like any of these options and is frantically trying to not accept what intellectually he knows he must.
I have a feeling that if we don't help him pull himself through this now, we'll be doing it all over again in six months.
I'd rather finish this part of his journey now.
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Post by nyuboi on Sept 13, 2013 17:09:43 GMT -5
Goodkel - your PM said to Either explicitly write what was said or say nothing. I was trying not to say what was said and only imply it out of respect for everyone on here that loves him and for Dr. K personally. I specifically said Dr. K was nothing but great to me, he called me within minutes of emailing him and then again corresponded with me via email. I did not misunderstand Dr. Roslin, but I'm sorry for posting it. I did delete it. Anyone can continue to PM me if you want to know anything more.
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Post by nyuboi on Sept 13, 2013 17:32:14 GMT -5
If you really insist on continuing this merry-go-round of indecision you should pick a few people who will still put up with you and PM them instead of airing the dirty laundry of your life on a forum. We're all not that interested in the 72 doctors you have met with and screwed around. There is doing due diligence when picking a surgeon and then there is OCD, this is the later. I want to make something very clear to everyone on here. When I lost Dr. Roslin, I went to NYU and was ready to proceed with Dr. Fielding. Dr. Roslin and every other surgeon spoke highly of Fielding. He took my insurance and was willing to do whatever procedure I want. He explained the risks and gave me the choice. The first week of August I had elected to get an RNY with Dr. Fielding. THEN, everyone on here jumped at me for using Fielding, with links and postings. I valued the opinion of people on here, which is why I went to the other 2 hospitals (Cornell and Mt. Sinai) because they were specifically ranked on here by one user, and mentioned by others. Every one said Fielding was bad news and to go to these other hospitals. Until that, I was doing a 9/16/2013 RNY surgery with NYU. I can't win. I listened about Fielding, and that meant starting the search over again... So I went to TWO additional doctors at the other two top hospitals, that's it. If I hadn't listened about Fielding I would have been jumped at on here. So I did, and that meant finding a new hospital and changing my insurance - and now I get attacked for that. Keep in mind that, as this thread was growing, I was NOT seeing doctors. They were out for the remainder of the summer and I was waiting for September appointments back to back this week. In summary, I lost Lenox Hill and then switched to NYU. After being told repeatedly to not use NYU, I went to two additional hospitals self-paying. In fact, I used the actual doctors suggested on here on these very pages. I specifically asked about doing it in stages (per suggestions on here). People outlined a plan for me, and I went to the very surgeons mentioned and spoke to them about it. In conclusion, the DS is out for me. It is clear my esophagus is too messed up for a sleeve of any kind, and expected to stay that way. I will likely go with RNY until I get done reading about the scopinaro procedure. Apparently the common channels were done very short with this procedure, 50-75cm, and I would need it modified to be more like DS/150cc. It is still done a lot in other countries, but is outdated in the U.S. and was improved to the DS. Chances are I will be getting an RNY next month.
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Post by newyorkbitch on Sept 13, 2013 17:40:06 GMT -5
Who is going to do the RNY? Will you fix the hernia at the same time?
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Post by nyuboi on Sept 13, 2013 17:56:22 GMT -5
Who is going to do the RNY? Will you fix the hernia at the same time? If my insurance will change to HIP soon enough (I am trying for 10/1/13 but they may not do it until 11/1/13), I will use Dr. Herron at Mt. Sinai. I loved him. If that doesn't work for any reason I will stick with NYU and just get it done. Yes, I am fixing the hernia at the same time. They also have to take down the plication that was done during the lap-band insertion. Dr. Roslin didn't do such when he removed it. There is a risk of changing my insurance if EmblemHealth/HIP is stricter with approving it than my current company (United Healthcare). I know United wasn't making me do a 6 month medically supervised diet and all because of it being revisional. Hopefully switching doesn't backfire on me, it's the only way I can have Mt. Sinai coverage though.
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Post by brooklyngirl on Sept 13, 2013 18:07:37 GMT -5
NYUBOI- I really think you should PM newyorkbitch since she's very well informed and seems to be the only one still willing to listen to all these minute details and give you good advice. This tread has gone berserk and now it seems to be just arguing. I hope you get yourself fixed and well soon. Kyal- I exalt you for putting into words what almost everyone else has been thinking
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Post by newyorkbitch on Sept 13, 2013 18:19:33 GMT -5
Use Herron. Waiting another month doesn't matter in the long run.
And you don't need to PM me. Much of this thread contains valuable information and it's good that people can see it.
If somebody doesn't want to read this thread - nobody is forcing them to.
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Post by nyuboi on Sept 13, 2013 18:30:58 GMT -5
Use Herron. Waiting another month doesn't matter in the long run. And you don't need to PM me. Much of this thread contains valuable information and it's good that people can see it. If somebody doesn't want to read this thread - nobody is forcing them to. Thank you, Newyorkbitch, for all the great feedback you have given and information. Please know I appreciate it.
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Post by goodkel on Sept 13, 2013 18:33:45 GMT -5
NYUBOI- I really think you should PM newyorkbitch since she's very well informed and seems to be the only one still willing to listen to all these minute details and give you good advice. This tread has gone berserk and now it seems to be just arguing. I hope you get yourself fixed and well soon. Kyal- I exalt you for putting into words what almost everyone else has been thinking There is going to be no more arguing on this thread. If anyone would like to continue it, take it to Rants and Raves. This thread is about getting Nyuboi into surgery. End of story. Good advice telling him to listen to NYB. She does seem to know her stuff about NYC hospitals.
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Post by newyorkbitch on Sept 13, 2013 18:43:11 GMT -5
I think what Fielding told you is nuts - pretty much every reputable surgeon told you that RNY is the best route for you, and Fielding said it's YOUR choice? That's like a chef saying well this vegetable is poisonous and this one isn't - but you can choose. It's a doctor's job to keep you as safe and healthy as possible, insofar as he/she can contribute. Use Herron. There is no rush here - this is a major, lifelong decision you are making.
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Post by nyuboi on Sept 13, 2013 18:46:30 GMT -5
I think what Fielding told you is nuts - pretty much every reputable surgeon told you that RNY is the best route for you, and Fielding said it's YOUR choice? That's like a chef saying well this vegetable is poisonous and this one isn't - but you can choose. It's a doctor's job to keep you as safe and healthy as possible, insofar as he/she can contribute. Use Herron. There is no rush here - this is a major, lifelong decision you are making. Yeah he recommended RNY as first choice, BPD as second, and BPD with duodenal switch as third, but said he would do whatever I want. He said the risks of wide open reflux and all would be greatest with DS and he doesn't suggest it. Good point you make that other surgeons would not even be willing to do anything with a sleeve on me. BTW, he's the only one with the BPD/Scopinaro idea. No one else even mentioned that. So it makes me not trust it so much.
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Post by nyuboi on Sept 18, 2013 15:54:32 GMT -5
Hmmm. Dr. Herron contacted me today and said we would likely only be undoing part, but not all, of the plication. More importantly, he said we would only be fixing the hernia if it is so large that a repair is mandated. Dr. Fielding was highly concerned with fixing the hernia. I guess Dr. Herron feels that the RNY alone will fix my problems. Not crazy about leaving the hernia...
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Post by newyorkbitch on Sept 18, 2013 15:56:33 GMT -5
What did Pomp say about these same issues?
Please, please, forget Fielding already.
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Post by nyuboi on Sept 18, 2013 16:14:53 GMT -5
What did Pomp say about these same issues? Please, please, forget Fielding already. I believe Pomp said to fix hernia - I will email him. Did not discuss the plication though. Even with switching insurance I will not have Cornell coverage for Pomp, and I didn't like him as much as Herron anyway. Herron had the best bedside manner I have seen in any top-ranked surgeon in the city. Did not feel like I was annoying him with my questions. He got comfortable in the room and we just chatted away. He's the only one that actually examined my stomach, and looked at all last two upper GI studies, and my acid reflux pH testing, and my motility testing, and went over the films with me. Herron seems excellent. I just don't like that the surgeons at Mt. Sinai do other types of surgery besides bariatric. Inabnet's practice seems less bariatric and more other types of things. But I'm sure Herron's experience is fine -- he has done between 100 and 150 DS's. Switching my insurance (which I find out can take effect 10/1/13 if I do it by tomorrow) will open up the Herron/Mt. Sinai option. And NYU takes it, so switching is probably best to leave options. If new insurance plan, HIP, denies my surgery, I have 90 days to switch back to my current plan with United Healthcare. Hopefully I don't have to go down that road. I just don't get why everyone is so anti-Fielding. IS it because of the lawsuits? Because every surgeon I have met has nothing but good things to say about him, and say he is an excellent surgeon. I brought up the lawsuits to Inabnet and he said "theres two sides to every story." I also know Fielding has extensive experience with BPD and BPD-DS including from before he came to the U.S. His wife is also highly ranked. And they are 100% bariatric surgeons. FIELDING: It's not the lawsuits I don't like, its his judgment. I trust he is an excellent surgeon, but I don't like his opinions or feedback. This is a man who wanted to keep my lap-band in and try to let it heal. Look how my esophagus is having gotten the band out, can you imagine if I listened to him and left the band in? He was so convinced it was just the hiatal hernia causing problems when I had the band, and to date has never spoke of my esophageal problems - it's like he's in denial about it because of being so pro-band. (My big problem is that NYU likes lap-bands). On my last visit last month, he again stressed the hernia, but never spoke of the tertiary contractions with my esophagus - something Dr. Herron did when looking at the very same NYU films Fielding had me do in radiology. (I brought many CD's and reports, Herron said I was an ideal patient - that they don't have to even send me for tests and I come more prepared than anyone). Another thing I don't love is NYU Radiology -- their report talks about the hernia and the GERD but mentions nothing of tertiary esophageal contractions and all like Lenox Hill's did. Don't worry --- not leaning towards NYU.
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Post by nyuboi on Sept 18, 2013 16:22:37 GMT -5
Dr. Pomp just got back to my email. Yes, he would fix the hiatal hernia when doing the RNY. Yes, he would take down the plication from the lapband at the same time.
I will stress to Dr. Herron I want the hernia repaired -- just have to word it carefully.
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Post by Deleted on Sept 18, 2013 16:47:11 GMT -5
Bedside manner be damned...get the best SURGEON.
While I don't know Herron, I do know Pomp and I found him to be very personable.
Liz
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Post by newyorkbitch on Sept 19, 2013 7:19:36 GMT -5
nyuboi, I do not understand why you think that a team that does other types of surgeries is not good. In fact that is what you need - because your issues are not only bariatric. Stick with Sinai. Herron is excellent, and so is the whole group.
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Post by newyorkbitch on Sept 19, 2013 7:27:20 GMT -5
Fielding has given you poor advice, his judgment is suspect - even dangerous. Avoid.
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Post by newyorkbitch on Sept 19, 2013 7:42:27 GMT -5
A little history. Herron, Pomp, Inabnet...they were all on Gagner's first DS team at Sinai. They were all there when I had my DS is 2000. Christine Ren was a fellow at Sinai at that time, and her first solo practice was at NYU which did not have a bariatric practice until she went there. So her DS experience is fairly limited. In fact when I have reached out to her from time to time, she has (responsibly) said that DS issues are best addressed by Gagner, Pomp, and others. I am sure Fielding's DS experience is limited as well. Certainly nowhere near the level of Pomp, Herron, Inabnet...they have been working with the DS for a long time, regardless of how many they do now...it is many years of experience. I do NOT think that the DS is for everybody....and I have great respect for the surgeons who do in fact perform multiple types of bariatric surgery and nevertheless do not recommend the DS for everyone. There are many factors involved in evaluating a patient for a DS - psychological, emotional, financial, intelligence, medical, etc etc. I think Herron is incredibly smart and sensitive and cautious. The fact that he is very cautious about which patients to perform which surgery on is, in my opinion, a very good and admirable thing.
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Post by PrettyGirlBounce on Sept 19, 2013 12:52:24 GMT -5
A little history. Herron, Pomp, Inabnet...they were all on Gagner's first DS team at Sinai. They were all there when I had my DS is 2000. Christine Ren was a fellow at Sinai at that time, and her first solo practice was at NYU which did not have a bariatric practice until she went there. So her DS experience is fairly limited. In fact when I have reached out to her from time to time, she has (responsibly) said that DS issues are best addressed by Gagner, Pomp, and others. I am sure Fielding's DS experience is limited as well. Certainly nowhere near the level of Pomp, Herron, Inabnet...they have been working with the DS for a long time, regardless of how many they do now...it is many years of experience. I do NOT think that the DS is for everybody....and I have great respect for the surgeons who do in fact perform multiple types of bariatric surgery and nevertheless do not recommend the DS for everyone. There are many factors involved in evaluating a patient for a DS - psychological, emotional, financial, intelligence, medical, etc etc. I think Herron is incredibly smart and sensitive and cautious. The fact that he is very cautious about which patients to perform which surgery on is, in my opinion, a very good and admirable thing. I just have to say it is SO amazing that you have this depth of first-hand knowledge to share with potential DS'ers. Thank you for paying it forward for newbies and others.
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Post by Deleted on Sept 19, 2013 13:19:35 GMT -5
Lisa I was thinking exactly the same thing.
Wonderful contribution NYB. Really rich.
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Post by kennyk on Sept 19, 2013 17:51:56 GMT -5
You should try Pomp, depending on the Circumstances. K
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Post by kennyk on Sept 19, 2013 17:55:28 GMT -5
you know we could now just end this thread on a smile.... K
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Post by Deleted on Sept 19, 2013 18:09:27 GMT -5
Are we going to have to be Fielding these puns from Herron-out? Or will I have to win a Roslin match with you to get you to promise to stop punning? Meh, I’m going to Inabnet you will Ren-ege on that promise anyway.
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Post by newyorkbitch on Sept 19, 2013 18:44:18 GMT -5
You really pulled at Rabkin out of a hat.
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Post by rickydeeswitch on Sept 19, 2013 19:04:53 GMT -5
Diane, you are clever, even in the abstract!
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Post by kennyk on Sept 19, 2013 21:42:22 GMT -5
Kini just imagine ending like this with over 370 posts? We put the fun in DSfunction! K
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Post by PrettyGirlBounce on Sept 19, 2013 23:00:27 GMT -5
Are we going to have to be Fielding these puns from Herron-out? Or will I have to win a Roslin match with you to get you to promise to stop punning? Meh, I�m going to Inabnet you will Ren-ege on that promise anyway. OMFG I just spewed tea on my computer screen. Lmmfao Diana!!!
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