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Post by cherylbaker on Jan 20, 2015 16:22:15 GMT -5
I dunno if anyone around here is familiar with the blood work we get done but I just got mine back and for the most part they are pretty close to what they were at 3 months (now at 6 months..) but my calcium related items seem wacked out..
PTH, intact 12-72 89 18
Calcium 8.6-10.4 8.8 9
Vitamin D-25 30-100 28.9 59
so the first set is the range second set it 3 months and 3rd set is 6 months.. as you see my calcium went up a little but pretty close to the 3 month reading.. but my pth and d25 like changed DRASTICALLY.. tried to read on the internet but could not find out what this is all about... does anyone know what these numbers mean and is there some other items I should look at to help see what is going on?
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Post by newyorkbitch on Jan 20, 2015 17:09:33 GMT -5
I dunno if anyone around here is familiar with the blood work we get done but I just got mine back and for the most part they are pretty close to what they were at 3 months (now at 6 months..) but my calcium related items seem wacked out.. PTH, intact 12-72 89 18 Calcium 8.6-10.4 8.8 9 Vitamin D-25 30-100 28.9 59 so the first set is the range second set it 3 months and 3rd set is 6 months.. as you see my calcium went up a little but pretty close to the 3 month reading.. but my pth and d25 like changed DRASTICALLY.. tried to read on the internet but could not find out what this is all about... does anyone know what these numbers mean and is there some other items I should look at to help see what is going on? Those are good changes
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Post by cherylbaker on Jan 20, 2015 18:21:05 GMT -5
yes I could figure that much out but I do not think I need them to continue changeing so drasticly.. do you think they wont continue to change? I went and dontated blood tonight and my iron (which is normally too low and I fail and they dont let me donate) was 14.5 very high.. nice... than my blood pressure was 107/78 nice nice nice.. the best part though was they did not have to use the BIG blood pressure cuff.. they didnt even think twice about it.. just used the normal one I feel like I am not any different but these were definate noticable things and not scale related hahahaha...
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Post by goodkel on Jan 20, 2015 19:19:08 GMT -5
I dunno if anyone around here is familiar with the blood work we get done
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Post by goodkel on Jan 20, 2015 19:27:35 GMT -5
I was told that we should never give blood as we become iron deficient so easily and it is difficult to correct.
What was your iron level AFTER donating?
There is nothing wrong with a deficiency being corrected swiftly. Now that you are in range, your next set of labs will tell you if you need to reduce anything. Odd are that what gets you to where you need to be is what will keep you there.
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Post by Simba on Jan 20, 2015 21:25:25 GMT -5
yes I could figure that much out but I do not think I need them to continue changeing so drasticly.. do you think they wont continue to change? I went and dontated blood tonight and my iron (which is normally too low and I fail and they dont let me donate) was 14.5 very high.. nice... than my blood pressure was 107/78 nice nice nice.. the best part though was they did not have to use the BIG blood pressure cuff.. they didnt even think twice about it.. just used the normal one I feel like I am not any different but these were definate noticable things and not scale related hahahaha... the change in your lab work is a positive change. You must have adjusted your intake of Vitd3 or Vitd3 and calcium. serum calcium gives you no information, you should have an ionized calcium, and your calcium is followed by your PTH. If your PTH is high, that means your serum calcium is low, and it is your PTHs only job to grab your calcium from your bones to support your calcium in your blood. Yours is low so that is great. Vitd3 also is imp for calcium reabsorption in the gut, simplifed answer. I would not donate whole blood, ever, with a DS. Your iron is not tested for whole blood donation it is your hemoglobin. As a malabsorption patient it is difficult to restore the ~500mLs that is taken. As a DSer I would not donate whole blood or plasma, I would donate platelets and that should be the only component you should think about donating.
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Post by jpcello on Jan 21, 2015 9:30:38 GMT -5
I went and dontated blood tonight and my iron (which is normally too low and I fail and they dont let me donate) was 14.5 very high.. nice... than my blood pressure was 107/78 nice nice nice.. the best part though was they did not have to use the BIG blood pressure cuff.. they didnt even think twice about it.. just used the normal one I feel like I am not any different but these were definate noticable things and not scale related hahahaha... As a DSer, you should NEVER donate blood. I understand the desire to donate, but next time make a monetary contribution and let others without malabsorption donate the blood. I suggest you keep an eye on your iron levels (particularly ferritin).
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Post by cherylbaker on Jan 21, 2015 13:17:41 GMT -5
I was told that we should never give blood as we become iron deficient so easily and it is difficult to correct. What was your iron level AFTER donating? There is nothing wrong with a deficiency being corrected swiftly. Now that you are in range, your next set of labs will tell you if you need to reduce anything. Odd are that what gets you to where you need to be is what will keep you there. Hmm no one ever told me not to donate.. have no way of knowing my level after donating.. You dont think it will just make the levels highet and higher and than get to high? Seems like it should.. so you think i should still take 2 vit a even though my level went up tremendously? I heard too much vit a is not good for you..
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Post by jpcello on Jan 21, 2015 13:42:28 GMT -5
Cheryl - your surgeon should have made that clear to you. Mine did. Also, if you are pre-menopausal, your monthly period in combination with blood donation could really empty your tank. You might want to get a quick check of your iron & ferritin just to make sure. If you are depleted, check with a hematologist about an infusion.
I would NOT cut back on any of your vitamins at this point.
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Post by cherylbaker on Jan 21, 2015 16:48:24 GMT -5
Cheryl - your surgeon should have made that clear to you. Mine did. Also, if you are pre-menopausal, your monthly period in combination with blood donation could really empty your tank. You might want to get a quick check of your iron & ferritin just to make sure. If you are depleted, check with a hematologist about an infusion. I would NOT cut back on any of your vitamins at this point. No period fir me anymore.. anyway to do that without going to a lab?
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Post by newyorkbitch on Jan 21, 2015 18:05:40 GMT -5
Cheryl - your surgeon should have made that clear to you. Mine did. Also, if you are pre-menopausal, your monthly period in combination with blood donation could really empty your tank. You might want to get a quick check of your iron & ferritin just to make sure. If you are depleted, check with a hematologist about an infusion. I would NOT cut back on any of your vitamins at this point. No period fir me anymore.. anyway to do that without going to a lab? Do you have an internist?
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Post by cherylbaker on Jan 22, 2015 10:39:36 GMT -5
I have a surgeon and a pcp.. but unless i cam do it without going to the lab it isn't going to happen. Had to have blood tests every month. . Afraid the insurance co will stop paying
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PeteA
Full Member
Posts: 221
Surgery Date: 4/15/13
Surgeon: Dr. Phillip Schauer
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Post by PeteA on Jan 22, 2015 16:30:14 GMT -5
I wouldn't make any changes based on these. If the D continues to rise then look at cutting back a little. ^0's a great number and I wouldn't even think about making a vitamin change until you are at 80. Opinions differ about going higher but nobody would say 80 is a problem.... I didn't quite get the bit about having labs every month but my insurance company didn't give me a problem having them every 3 months the first year. As for the giving blood. My surgeon would have had me wait for 6 months after surgery but he doesn't see a problem. It is only after seeing some of the personal stories on the boards that I have developed misgivings and I decided to wait, at least, until I have a track record of all good levels on my iron labs. They are all low normal or just under normal at the moment. Pete
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Post by goodkel on Jan 23, 2015 0:49:00 GMT -5
I was told that we should never give blood as we become iron deficient so easily and it is difficult to correct. What was your iron level AFTER donating? There is nothing wrong with a deficiency being corrected swiftly. Now that you are in range, your next set of labs will tell you if you need to reduce anything. Odd are that what gets you to where you need to be is what will keep you there. Hmm no one ever told me not to donate.. have no way of knowing my level after donating.. You dont think it will just make the levels highet and higher and than get to high? Seems like it should.. so you think i should still take 2 vit a even though my level went up tremendously? I heard too much vit a is not good for you.. Your levels are fine now. Why fix what isn't broken? You'll know at your next set of labs in 90 days whether you need to decrease anything.
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