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Post by abbysmom on Aug 9, 2014 18:07:57 GMT -5
Been 3 years. I only lost about 20 pounds after my DS. Followed all rules. Have 75/250 bypass. SW 215 CW 194. ht. 5'1 Had upper endoscopy month ago, told I have hourglass shaped stomach and gastroparesis. Have pain in stomach area, also get muscle spasms in the surrounding area. Have made appt. with my surgeon to check me out. Just wondering anyone heard of, or have this, or have any comments??? By the way my doctors, internist and gastro, never heard of a DS. Yea...I know!!! But I should have had this checked out sooner, I just thought I was not meant to loose my weight because this was a revision..until now.
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Post by nursemelanie on Aug 9, 2014 20:04:12 GMT -5
What do you mean 75/250 bypass?
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Post by abbysmom on Aug 9, 2014 20:11:30 GMT -5
my common channel/alimentary limb
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Post by Joanne on Aug 10, 2014 7:19:12 GMT -5
What did you revise from? Who is your surgeon?
Did you have a sleeve before your revision or was your sleeve revised from something else? For example, did you have a LapBand that might have created scar tissue in your stomach?
Please let us know a little more, and also please post what you eat in a typical day and we'll see if we can help.
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Post by illinids2 on Aug 10, 2014 10:09:14 GMT -5
and honestly I don't really know my measurements and have never worried about them.
As Joanne said it would be good to understand the full revision, from what type to what typed (assume DS but hear about different procedures now days). Additionally your food and vitamin log would be helpful.
A lot of protein (I eat 200 grams a day at least) and liquids are what fuel the weight loss for a DS.
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Post by abbysmom on Aug 10, 2014 14:47:37 GMT -5
Was revised from RNY 1995 kept weight off for 12 years. Husband became terminally ill.Started the weight gain. Husband passed away in 2011. Decided to look into revision. Researched decided DS was best for me. Revised to DS in july 2011. Like I said only lost about 20 pounds. Followed the DS diet stalled for weeks, vitamins as told. Just problem with vitamin D which I corrected. Now I eat yogurt, protein shakes, small meal at least 6 times a day, because of gastroparesis. Have not taken my vitamins over a year. My labs are fine infact B-12 is high. Thought it was just me and I could not loose on this. Never contacted surgeon until now. I really do not want to mention till he can give me some answers. Until then I wish someone could give their input.
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Post by illinids2 on Aug 10, 2014 14:53:14 GMT -5
Was revised from RNY 1995 kept weight off for 12 years. Husband became terminally ill.Started the weight gain. Husband passed away in 2011. Decided to look into revision. Researched decided DS was best for me. Revised to DS in july 2011. Like I said only lost about 20 pounds. Followed the DS diet stalled for weeks, vitamins as told. Just problem with vitamin D which I corrected. Now I eat yogurt, protein shakes, small meal at least 6 times a day, because of gastroparesis. Have not taken my vitamins over a year. My labs are fine infact B-12 is high. Thought it was just me and I could not loose on this. Never contacted surgeon until now. I really do not want to mention till he can give me some answers. Until then I wish someone could give their input. Cam you please give a typical days food log? Followed DS diet can mean a lot of things seeing there is a great deal of misinformation out there? Surgeons typically don't have a clue about living with DS so we can help if you answer some specific questions
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Post by Joanne on Aug 10, 2014 17:39:30 GMT -5
Was revised from RNY 1995 kept weight off for 12 years. Husband became terminally ill.Started the weight gain. Husband passed away in 2011. Decided to look into revision. Researched decided DS was best for me. Revised to DS in july 2011. Like I said only lost about 20 pounds. Followed the DS diet stalled for weeks, vitamins as told. Just problem with vitamin D which I corrected. Now I eat yogurt, protein shakes, small meal at least 6 times a day, because of gastroparesis. Have not taken my vitamins over a year. My labs are fine infact B-12 is high. Thought it was just me and I could not loose on this. Never contacted surgeon until now. I really do not want to mention till he can give me some answers. Until then I wish someone could give their input. I'm very sorry about the loss of your husband. You will need a surgeon or good GI doctor to evaluate your gastroparesis. I would think you need to concentrate on that problem first, before addressing the weight loss. We'll be glad to give you some advice on the weight loss, though, if you let us know what a typical days eating is like for you. What did you eat today?
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Post by abbysmom on Aug 10, 2014 18:56:55 GMT -5
I had plain yogurt for breakfast and lunch. Had 1/3 of small pork chop for dinner. Coffee. water throughout the day. This is a typical day. I must say I am bloated all the time because of the gastroparesis. Gastro doc told me to eat beans, lentils for protein. No vegs that give me gas.or lettuce.or fruit. Also no meat but I do eat meat anyway small pieces and chew,chew,chew. Thank you for your condolences.
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Post by illinids2 on Aug 10, 2014 19:14:03 GMT -5
And I am sorry about your husband
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Post by goodkel on Aug 10, 2014 22:41:27 GMT -5
I had plain yogurt for breakfast and lunch. Had 1/3 of small pork chop for dinner. Coffee. water throughout the day. This is a typical day. I must say I am bloated all the time because of the gastroparesis. Gastro doc told me to eat beans, lentils for protein. No vegs that give me gas.or lettuce.or fruit. Also no meat but I do eat meat anyway small pieces and chew,chew,chew. Thank you for your condolences. For one thing, you are not getting enough protein. It doesn't appear that you are even at the minimum of 90 grams of protein a day. Get some whey isolate protein powder and keep a shake next to you to take small sips continually until you have reached 90 grams or more. Protein deficiency can cause life threatening health problems. If you do not have the surgery report from your revision, you need to get a copy. The records department of the hospital can provide you with them. It is unheard of for someone with the DS intestinal configuration to not require numerous vitamins. Do you have hard copies of your lab results? Those would be helpful to see, too. I am interested to read your answers to the other questions asked here. Besides the diet, how does your doctor intend to treat this? That diet is neither healthy for you or sustainable. I'm glad you've found us. We'll do what we can to help you.
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Post by abbysmom on Aug 11, 2014 2:19:46 GMT -5
Thank you. Do you have a flavor protein powder you like the best? I do have a copyof my surgery report. My intestines were twisted when surgeon went in. Took 90 minutes to remove adhesions before he could start on DS. At least this is what I am reading.
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Post by abbysmom on Aug 11, 2014 2:23:20 GMT -5
I did have copies of my labs but not anymore. Not taking vitamins and being okay with a DS does not make sense.
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Post by Girlrocker on Aug 11, 2014 9:24:39 GMT -5
Hi Abbysmom, I'm an RNY to DS revision as well, there are several of us here. This is a very complex surgery, usually performed by a highly experienced, vetted surgeon. Here is a list of surgeons; and certainly, more surgeons are doing the revision as it becomes more common due to the high rate of failure. weightlosssurgery.proboards.com/thread/7262/revisions-vetted-surgeons-list-update2I think you should take a look, if your surgeon wasn't one of these, you might want to also consider a second opinion for further evaluation. You're in a good place for support, veteran experience here. Can you also share your height/weight stats - where you were when you had your RNY, how much you lost, your regain/weight at the time of DS. The one thing the RNY and DS share is the need to focus on a protein-centric/first eating way of life, moderate carbs - lower in the beginning to maximize weight loss. The vitamin regimen for the DS is also crucial because of the rate of of malabsorption of protein and fat. Protein is key - especially animal-based proteins. Because the DS gives us a metabolic reset and it is stimulated by eating protein.This is true for the 'normal' body, protein helps metabolism becauase the body does the work to break down the food and use it. It's why simple carbs are not good for weight loss and management, they convert quickly into sugar and fat, do not break down. You should be at 120g protein and above now. Only during the early months when healing do you do liquids, soft food while you progress into more dense, solid foods. You received no guidance at all for a very serious, complicated revision, and I'm sorry about that, and, very sorry for the loss of your husband. If you could do a signature and include your stats, it will help you get the best, most specific information for your situation. Food: do you have food intolerance, preferences? There is loads of information here, on protein foods, recipes. You can eat all day long as long as it's protein and moderate carbs - usually 50g to help lose, increase them once you're at goal/maintenance - chicken wings, drumsticks, roasted chicken, burgers, steak, sloppy joe, cheesy omlettes, one pot dishes/stews, chili, tuna/egg salad with full mayo, all the cheese you want, bacon, sausage, deli, pork, ribs, greek yogurt you flavor yourself with sugar free options, nuts cottage cheese, peanutbutter. You don't have to count fat at all, fat keeps us 'moving' so no more light, fat free. The more we know about what you like/dislike, the more suggestions we can give you food wise. Here's a link to good protein foods: weightlosssurgery.proboards.com/thread/2062/foods-high-proteinHere's a link that explains what complete protein is (animal) and why its important for DSers: weightlosssurgery.proboards.com/thread/8782/complete-proteinIt's fine to supplement with protein shakes, especially to get your protein count up if you are struggling with eating. I still drink one a day because I like 'banking' the protein. You are looking for whey protein, isolate protein - Champion, Body Fortress (at Walmart) Unjury, Pure Protein all good. Double the scoops and you can get 50-60g protein a shake; or have 1 cup plain greek yogurt (22g protein) with one scoop of chocolate protein, add some sweetener alternative, and you have 45-50g protein and a treat that tastes like a cross between pudding and ice cream. Definitely get your labs, and post them here. If you need help, ever want to ask questions privately, PM me here. Glad to have you and we can help.
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Post by goodkel on Aug 13, 2014 2:46:30 GMT -5
Thank you. Do you have a flavor protein powder you like the best? I do have a copyof my surgery report. My intestines were twisted when surgeon went in. Took 90 minutes to remove adhesions before he could start on DS. At least this is what I am reading. I buy my protein powder at Walmart. It runs around $18 for a large 1.95 lb. tub. The brand is Body Fortress--Super Advanced Whey Protein. Two scoops equal 60 grams of protein. I use the chocolate flavored, shake it up with water in a blender ball cup, and put it back in the fridge for an hour to get really cold. It doesn't have that gag inducing protein drink taste. You need to eat more and get in more protein. Definitely get a fresh set of complete labs. There is a lab template here: weightlosssurgery.proboards.com/thread/8800/lab-templatethat you can use to both track your labs and as a list of what labs you need drawn. I would recommend a CT scan with contrast without involving your surgeon so you can get a clear, independent idea of what your intestines actually look like. I suspect that something is "off". Medical professionals being ignorant about the DS is pretty much standard. There are some excellent images of the DS that you can print out here: weightlosssurgery.proboards.com/thread/7985/images-dsMake copies. Have your pcp put one in your file for reference. Hand them out to those close to you. Keep one in your glove box. Have them handy to give to ER personnel just in case, and definitely make sure that your gastroenterologist has a copy. When you get the scan, it should look like these images or something is wrong.
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Post by abbysmom on Aug 14, 2014 18:02:30 GMT -5
Hi Girlrocker and goodkel. I want to thank both of you so much for the info. Really answered many of my questions. I went to Walmart and purchased the vanilla Champion body fortress powder, not too bad. Monday ended up in the ER. Was in so much pain left of stomach. Dr. was a real cocky jerk! After Cat scan with contrast he said how many surgeries have you had?? I said the same amount that's written in my history. He said its negative and I suggest you try Chinese herbal medicine or maybe acupuncture because you have exhausted Western medicine. I know it was all about the DS and he did not have a clue. Sorry, but what an asshole!!! My follow up with my PCP was better. She thinks I was so full of gas and it did not move. We talked and decided that I am going to try and see Dr. Alverdy head of bariatric dept. at University of Chicago. He does revision DS. I cannot make the trip to see my DS surgeon because he is so far away and I cannot afford the round trip air, motel,and car rental at this time. But anyway spoke with his nurse today and I will be getting an UGI tomorrow, have the CT scan and EDG already. He wants to see these tests first and decide if he wants to see me. Hope so, I know my body and something is not right besides the gastroparesis.
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Post by bboop on Aug 14, 2014 18:41:07 GMT -5
I wish you the best with Alverdy. You must find somebody to give you some relief. Good luck, please come back and let us know what happens.
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Post by west4thavenue on Aug 14, 2014 19:25:12 GMT -5
Good luck to you!
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Post by abbysmom on Aug 14, 2014 22:07:24 GMT -5
Thank you everyone. I will definitely keep you posted. By the way I really like this forum!!
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Post by goodkel on Aug 14, 2014 23:06:00 GMT -5
Hi Girlrocker and goodkel. I want to thank both of you so much for the info. Really answered many of my questions. I went to Walmart and purchased the vanilla Champion body fortress powder, not too bad. Monday ended up in the ER. Was in so much pain left of stomach. Dr. was a real cocky jerk! After Cat scan with contrast he said how many surgeries have you had?? I said the same amount that's written in my history. He said its negative and I suggest you try Chinese herbal medicine or maybe acupuncture because you have exhausted Western medicine. I know it was all about the DS and he did not have a clue. Sorry, but what an asshole!!! My follow up with my PCP was better. She thinks I was so full of gas and it did not move. We talked and decided that I am going to try and see Dr. Alverdy head of bariatric dept. at University of Chicago. He does revision DS. I cannot make the trip to see my DS surgeon because he is so far away and I cannot afford the round trip air, motel,and car rental at this time. But anyway spoke with his nurse today and I will be getting an UGI tomorrow, have the CT scan and EDG already. He wants to see these tests first and decide if he wants to see me. Hope so, I know my body and something is not right besides the gastroparesis. Get a copy of that scan for your own records. Keep copies of all scans and surgery reports. The hospital can provide them for you. I carry a manila envelope to every doctor appointment with cds of my scans, copies of my labs, and copies of all test results. I can't count how many times having those on hand helped my doctors cut to the chase. I see several (not for anything to do with my DS) and this helps keep them all in the loop with what is going on with my care. Include all records having to do with your gastroparesis diagnosis, too. BIG sigh of relief that you are going to see Alverdy instead of your original surgeon. Who was he, by the way? I am not familiar with the Champion brand of protein. Any protein powder is workable as long as it is whey isolate protein. Many companies use collagen, which is useless. Sending good thoughts that Dr. Alverdy will see you.
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Post by abbysmom on Aug 15, 2014 15:28:46 GMT -5
Got copy of the latest reports and Cd's. Waiting on report of UGI. Had some pain when barium passed through beginning of first channel, above navel area. I would rather not say who my original surgeon is till I get some answers. I want to get a different opinion first, if that makes any sense. And the cost traveling and lodging plays a big factor in this. I know my health comes first, but when you can't afford it...you just can't do it. The protein powder I purchased was whey 1 scoop was 30 protein and 180 calories when mixed with water...does this sound right??
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Post by Joanne on Aug 15, 2014 16:44:14 GMT -5
Got copy of the latest reports and Cd's. Waiting on report of UGI. Had some pain when barium passed through beginning of first channel, above navel area. I would rather not say who my original surgeon is till I get some answers. I want to get a different opinion first, if that makes any sense. And the cost traveling and lodging plays a big factor in this. I know my health comes first, but when you can't afford it...you just can't do it. The protein powder I purchased was whey 1 scoop was 30 protein and 180 calories when mixed with water...does this sound right?? No one is on a witch hunt after your surgeon, the reason many are asking is that a revision is very complicated, and we've seen more than our share of people have issues with either complications or subpar results. There are an elite group of surgeons with this kind of experience. Would you at least answer if your surgeon is one of those I'll list here? Rabkin Keshishian Roslin Simper Elairny Greenbaum ETA: Those on this list of course have complications and issues, and others not on the list have successful surgeries. It's all about how likely any issues are that might be a result of something surgical.
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Post by goodkel on Aug 15, 2014 17:46:49 GMT -5
Got copy of the latest reports and Cd's. Waiting on report of UGI. Had some pain when barium passed through beginning of first channel, above navel area. I would rather not say who my original surgeon is till I get some answers. I want to get a different opinion first, if that makes any sense. And the cost traveling and lodging plays a big factor in this. I know my health comes first, but when you can't afford it...you just can't do it. The protein powder I purchased was whey 1 scoop was 30 protein and 180 calories when mixed with water...does this sound right?? That protein powder sounds perfect. Just like the 30 grams per scoop that I take, no idea about the calories since they don't matter. I put two scoops in each shake. Of course you are entitled to your privacy if you don't want to name him until you have more info. But, I suspect that he wasn't an experienced revision surgeon or even a true DS surgeon at all. I have never heard of results like yours from a DS surgeon.
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Post by abbysmom on Aug 15, 2014 17:58:37 GMT -5
Yes, very experienced revision surgeon.
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Post by goodkel on Aug 15, 2014 22:47:56 GMT -5
Yes, very experienced revision surgeon. Then he is one of these: Rabkin Keshishian Roslin Simper Elairny Greenbaum There are no other very experienced RnY to DS revision surgeons in the US.
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Post by abbysmom on Aug 16, 2014 9:46:14 GMT -5
Yes. The powder I bought is Body Fortress.
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Post by Girlrocker on Aug 16, 2014 11:06:12 GMT -5
Yes. The powder I bought is Body Fortress. Yep, I use this one too, great quality and price, I get it at Walmart if I'm out of the city, and the Kroger chain here carries it too, and I have a coupon for it since I'm a regular Ralph's shopper (in California) And Abby, yes please know, no 'witch hunt' here at all, and we respect privacy. Our RNY to DS revision really is highly specialized, and a short list of surgeons we know of do it. As I mentioned, of course, new ones joining the ranks as this revision becomes more common, due to the failure rate of the RNY. And is not a surgery meant to be undone, though it can be. We really do worry about people here and want you, everyone to have the best resources and information possible. Further to what Joanne said, of course even the most experienced surgeons have a complication rate, part of the mix in major surgery and especially one as complicated as this one. I do know revision patients who have had to go for a second tune-up, sometimes it takes two times to fix everything. It's very possible you might need follow-up evaluation something not quite right. The DS itself is not a one size fits all procedure, so factor in revising from an RNY, and there could be issues. They are surgeons, not gods and we have to seek help, ask questions. I will say you are in the best place to talk as openly as you feel comfortable, this is a very temperate place for an online community. I DO think it's a very good idea to start with your food/nutrition intake because whatever the case, it's something you need to do anyway, your protein grams should be much higher, 120g above, and you can skinny down your carbs to 50g.
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Post by abbysmom on Aug 16, 2014 12:23:38 GMT -5
Thank you Girlrocker!!! I love the Body Fortress. I mixed in coconut and banana extract and it was delicious.I have been drinking Atkins...too expensive not enough protein. As far as my Surgeon, I love him. I think this is my own body's' fault, if that makes since. I have been diagnosed with gastroparesis. This in itself is causing problems with Gastric reflux and since my stomach is hourglass shaped it is not emptying correctly. Hopefully I will get some answers soon.
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Post by illinids2 on Aug 16, 2014 13:26:18 GMT -5
Thank you Girlrocker!!! I love the Body Fortress. I mixed in coconut and banana extract and it was delicious.I have been drinking Atkins...too expensive not enough protein. As far as my Surgeon, I love him. I think this is my own body's' fault, if that makes since. I have been diagnosed with gastroparesis. This in itself is causing problems with Gastric reflux and since my stomach is hourglass shaped it is not emptying correctly. Hopefully I will get some answers soon. Sorry hon but I don't buy the "your own body's fault". You had surgery and it isn't your body's fault that your stomach ended up in an hour glass shape (surgeon made your new stomach's shape) and not sure it is your fault you have gastroparesis either. You may have answered but are you taking a PPI for your GERD? Most DS'rs need a PPI, at least early on. Even if your stomach is hour glass shaped it should still empty through your pylorus unless the inner part of the hour glass is so small it is like a stricture. In any case if your stomach isn't emptying properly due to shape, that can be surgically repaired. Please try eating some broths and soft protein foods to help get more protein in and through your system.....protein powder if that is all you can do. Hopefully you get this worked out soon. This place is a wealth of knowledge and I truly believe you will find help here.
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Post by abbysmom on Aug 16, 2014 19:41:09 GMT -5
Was able to get copy of UGI online. Says I have gastric reflux and luminal narrowing @gastric fundus and @distal stomach. I had no trouble with the barium going down. But liquids are not the problem. Solids are.
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