Post by fluffyme on Sept 24, 2019 17:42:30 GMT -5
hey there,
i'm 38 (had the DS in 2011) and just found out i have osteoporosis (i'm right on the borderline of being osteoporosis). I'm so upset, scared and confused:(
I'm already on creon, due to past complications. Currently I'm 95kg (put on 10kg once I started Creon).
I'm going to start doing weight bearing pilates and exercises, and doctors will give me Zoledronate IV treatment every year, starting from March 2020. Should I do yoga, or do I have to lift weights at the gym (which I really hate)? What about walking?
1) Could someone pls advise me what kind of Vit K (1&2) I should be taking?
This is what I currently take daily:
1 tablet = 2,200 ug K (1000 µg K1, 1000 ?g K2 (menaquinone-4), and 200 µg K2 (as menaquinone-7)
2) How do I check my vit K levels on my blood results?
My recent blood results
Parathyroid Hormone 36.85 (range 15-65)
Total Protein 76 (60-80)
Albumin 43 (35-50)
Calcium 2.31 (2.20-2.60)
Adjusted Calcium 2.33 (2.20-2.60)
B12 852 (1 197-771) i've lowered the dose (1,000 ug) from once a month to every other month
D 100 (75-200)
3) Can the osteoporosis be reversed? Was it due to the DS? my mom and grandmother also had some for of bone osteoporosis / osteopenia
Thanks.
I've attached my blood results in Jul 2019
My vit schedule:
Breakfast
3 x 50 mg ZINC CHELATED
1st 30g protein shake
2 x 25,000 CREON
1 x B COMPLEX '50'
1 x 210 mg MAGNESIUM CITRATE
1 x 400 E iu, dry
2 x 25,000 iu A PALMITATE
3 x 250 mg CALCIUM CITRATE
2nd 30g protein shake
2 x 25,000 CREON
1 x 210 mg MAGNESIUM CITRATE
2 x 25,000 iu A PALMITATE
1 x MULTIVITAMIN
1 x 50,000 iu D3 CHOLECALCIFEROL
3 x 250 mg CALCIUM CITRATE
3rd 30g protein shake
2 x 25,000 CREON
2 x 25,000 iu A PALMITATE
1 x 50,000 iu D3 CHOLECALCIFEROL
3 x 250 mg CALCIUM CITRATE
1 x 2,200 ug K (1000 µg K1, 1000 μg K2 (menaquinone-4), and 200 µg K2 (as menaquinone-7)
1 x 400 ug FOLIC ACID, every week
1 x 1,000 ug B12, changed it to every month
Middle of the night
1 x 2500 ug COPPER CHELATED
3 x 25 mg IRON CARBONYL
2 x 1,000 C mg
i'm 38 (had the DS in 2011) and just found out i have osteoporosis (i'm right on the borderline of being osteoporosis). I'm so upset, scared and confused:(
I'm already on creon, due to past complications. Currently I'm 95kg (put on 10kg once I started Creon).
I'm going to start doing weight bearing pilates and exercises, and doctors will give me Zoledronate IV treatment every year, starting from March 2020. Should I do yoga, or do I have to lift weights at the gym (which I really hate)? What about walking?
1) Could someone pls advise me what kind of Vit K (1&2) I should be taking?
This is what I currently take daily:
1 tablet = 2,200 ug K (1000 µg K1, 1000 ?g K2 (menaquinone-4), and 200 µg K2 (as menaquinone-7)
2) How do I check my vit K levels on my blood results?
My recent blood results
Parathyroid Hormone 36.85 (range 15-65)
Total Protein 76 (60-80)
Albumin 43 (35-50)
Calcium 2.31 (2.20-2.60)
Adjusted Calcium 2.33 (2.20-2.60)
B12 852 (1 197-771) i've lowered the dose (1,000 ug) from once a month to every other month
D 100 (75-200)
3) Can the osteoporosis be reversed? Was it due to the DS? my mom and grandmother also had some for of bone osteoporosis / osteopenia
Thanks.
I've attached my blood results in Jul 2019
My vit schedule:
Breakfast
3 x 50 mg ZINC CHELATED
1st 30g protein shake
2 x 25,000 CREON
1 x B COMPLEX '50'
1 x 210 mg MAGNESIUM CITRATE
1 x 400 E iu, dry
2 x 25,000 iu A PALMITATE
3 x 250 mg CALCIUM CITRATE
2nd 30g protein shake
2 x 25,000 CREON
1 x 210 mg MAGNESIUM CITRATE
2 x 25,000 iu A PALMITATE
1 x MULTIVITAMIN
1 x 50,000 iu D3 CHOLECALCIFEROL
3 x 250 mg CALCIUM CITRATE
3rd 30g protein shake
2 x 25,000 CREON
2 x 25,000 iu A PALMITATE
1 x 50,000 iu D3 CHOLECALCIFEROL
3 x 250 mg CALCIUM CITRATE
1 x 2,200 ug K (1000 µg K1, 1000 μg K2 (menaquinone-4), and 200 µg K2 (as menaquinone-7)
1 x 400 ug FOLIC ACID, every week
1 x 1,000 ug B12, changed it to every month
Middle of the night
1 x 2500 ug COPPER CHELATED
3 x 25 mg IRON CARBONYL
2 x 1,000 C mg
