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Post by newyorkbitch on Mar 23, 2015 19:54:17 GMT -5
Also I wanted to ask something else. I have chronic lyme, I have seen a Lyme Literate Doctor and was on many meds. I would like to do the prescription meds and holistic meds as well. Unfortunately my insurance does not believe in Chronic lyme and will not cover my prescriptions. I have to pay out of pocket and its about $700,1000 a month so I had to stop treating it. I may have to take them as long as 1 year and they had even mentioned a picc line intravenous antibiotics. Which is even more expensive. So I have to wait to save up for it and then do it when I have enough for at least 6 months of treatment. All this to ask, if I wait til after WLS to continue treatment for the chronic lyme, will this affect the amounts of meds I have to take due to my body's malabsorption? I would think it would I havent completely researched this yet Plus I have to say this. If you cannot afford your meds and your health care....do not get a DS. Do not. Are you in therapy?
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Post by goodkel on Mar 24, 2015 0:30:11 GMT -5
Also I wanted to ask something else. I have chronic lyme, I have seen a Lyme Literate Doctor and was on many meds. I would like to do the prescription meds and holistic meds as well. Unfortunately my insurance does not believe in Chronic lyme and will not cover my prescriptions. I have to pay out of pocket and its about $700,1000 a month so I had to stop treating it. I may have to take them as long as 1 year and they had even mentioned a picc line intravenous antibiotics. Which is even more expensive. So I have to wait to save up for it and then do it when I have enough for at least 6 months of treatment. All this to ask, if I wait til after WLS to continue treatment for the chronic lyme, will this affect the amounts of meds I have to take due to my body's malabsorption? I would think it would I havent completely researched this yet My first inclination was to ask if you had appealed your insurance company's decision. But, I researched first because I hadn't heard of "chronic" lyme disease and discovered that studies indicate that antibiotics are not only ineffective, but dangerous after the infection is gone. So, no wonder that they refuse to pay. From the NIH: www.niaid.nih.gov/topics/lymedisease/understanding/pages/chronic.aspxLyme disease is an infection caused by the bacterium Borrelia burgdorferi. In the majority of cases, it is successfully treated with oral antibiotics. Physicians sometimes describe patients who have non-specific symptoms (like fatigue, pain, and joint and muscle aches) after the treatment of Lyme disease as having post-treatment Lyme disease syndrome (PTLDS) or post Lyme disease syndrome (PLDS). The term “chronic Lyme disease” (CLD) has been used to describe people with different illnesses. While the term is sometimes used to describe illness in patients with Lyme disease, in many occasions it has been used to describe symptoms in people who have no evidence of a current or past infection with B. burgdorferi (Infect Dis Clin N Am 22:341-60, 2008). Because of the confusion in how the term CLD is employed, experts in this field do not support its use (New Engl J Med 357:1422-30, 2008). How is Lyme disease treated? For early Lyme disease, a short course of oral antibiotics such as doxycycline or amoxicillin is curative in the majority of the cases. In more complicated cases, Lyme disease can usually be successfully treated with three to four weeks of antibiotic therapy. I n patients who have non-specific symptoms after being treated for Lyme disease and who have no evidence of active infection (patients with PTLDS), studies have shown that more antibiotic therapy is not helpful and can be dangerous.
------------------------------------------------------------------------------------------------------------- Are you still receiving positive results for the Borrelia burgdorferi bacteria? I'm just trying to get a handle on your medical situation. If you do have an active infection, that would usually rule out surgery of any kind.
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derinoe
Junior Member
Posts: 75
Surgery Type: DS
Surgery Date: 06/04/2014
Surgeon: Dr. Marek L.
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Post by derinoe on Mar 24, 2015 2:02:52 GMT -5
Hi, I was wondering if you had an appointment with pariantologyst yet? With all the health issues you are having, you pregnancy will be high risk. You need to know the risk to you and your future baby. What are the chances of passing your health issues to your child? He can sceean and prepare you for what may come. You really need to know all the risk you will put yourself in and your future child, especially not having your illnesses in remition. Some of the medications you have mention is not safe for the fetus. You may have to wait 3-6 month to be off of the meds that can harm your child before you try to conceive. There is no way of cutting your time to a year or so from recommend 2 after WLS. It will harm your baby if you do not follow this rule. You have been ask this question before, have you seen a therapist? You really need to find one that can help you in difficult time like this.
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Post by Joanne on Mar 24, 2015 8:53:50 GMT -5
I'm concerned about how much you seem to be rushing into this. Most people contemplate and research weight loss surgery for a long time. It is a big step. With your health issues, you are already complicated and making a bad decision here can make things much, much worse.
I dont blame you for not being able to lose weight on your own. If I could have done that, I wouldn't be here. I am wondering, though, if a modest say 10% weight loss is something you can do to help relieve your symptoms while you take the time to do the consults and research. That might be something you can manage to give yourself an extra few months.
Please dont rush into the wrong surgery or surgeon for you because you think it's your only option. A bad decision here could have major consequences for you.
At a minimum- your Lyme- get that stable and under control. Find out if there is a conflict of any medicine you take now, and any medicine you might possibly need for it - that could be malabsorbed and causes you problems. Find out if any of these current or future medicine could cause an imbalance in your digestive tract that might make you prone to C-diff or other infections.
Review your entire history, your monthly budget, everything with the doctors. Talk about where you are now, and what you might possibly need in the future. You are not only picking a surgery, you are in essence picking a new digestive system for the rest of your life. And while some of these surgeries can be revised it is a mistake to go into it thinking that. You have to think of the decision you make as not reversible, and imagine what it will be like to live with for the rest of your life.
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derinoe
Junior Member
Posts: 75
Surgery Type: DS
Surgery Date: 06/04/2014
Surgeon: Dr. Marek L.
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Post by derinoe on Mar 24, 2015 9:47:59 GMT -5
Joanne has a great advice for all people considering DS. It is not something you want to rush in. For some of us it took years the come to the final decision. If financial part is an issue now, it will impact the surgery you can have as well. We need a lot of vitamins, proteins, protein powders and blood work cost a lot even after the insurance. It is a life long commitment. Take your time, don't rush in to it, many have said it's not a sprint it is a marathon!
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